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The Patient's Tale

An Annotated Bibliography of Autopathographies

J K Aronson
 

The following is an incomplete list of accounts of their authors' own experiences with illness (including ghosted accounts). Most of them are single volume autobiographical accounts, but the list also includes some books of essays or single essays that have appeared in books; these are marked with an asterisk.

This annotated bibliography is work in progress. Please tell me about other titles that you think I should add.

I have for the most part accepted the diagnoses with which these accounts are labelled, even when I have had doubts. However, I have reclassified Morag Coate's account under manic-depression, since I have reason to believe that the diagnosis of schizophrenia with which R D Laing labelled her illness was wrong.

In general I have not included the following categories:

  • Accounts of other people's illnesses - for example, the many books of case histories by people such as Oliver Sacks and Harold Klawans, first-hand accounts about individual people, historical analyses, such as "George III and the Mad-Business" by Ida Macalpine and Richard Hunter, and books of essays (e.g. William Ober's "Boswell's Clap").
  • Newspaper or journal articles.
  • Semi-autobiographical novels—for example, "The Ordeal of Gilbert Pinfold" by Evelyn Waugh, "The Naked Lunch" by William Burroughs, "Cain's Book" by Alexander Trocchi.
  • Fictions about illness—for example, "The Idiot" by Dostoevsky, "The Magic Mountain" by Thomas Mann, "The Counterlife" by Philip Roth.
  • Poems—for example, Anne Sexton's "To Bedlam and Part Way Back" and Sylvia Plath's "Ariel"

Writing critiques of material of this sort is a losing game. These people have written accounts of times during which they were in pain of some sort, whether physical or mental, often both, and to criticize their accounts of themselves may seem churlish. However, in preparing my brief annotations I have put aside any emotional response I may have had to what are sometimes heart-rending accounts and have tried to give a physician's unsentimental opinion on the value of the books as sources of information from the medical point of view.

I am keen to receive copies of published reviews of any of these books.


Strokes and neurosurgery

Arteriovenous malformation/cerebral haemorrhage/neurosurgery/epilepsyArteriovenous malformation/neurosurgeryCerebellar cyst/neurosurgery Locked-in syndrome Paraplegia/quadriplegiaStroke

Other neurological problems


Amyotrophic lateral sclerosis Anosognosia Blindness Blindness and deafness Deafness Epilepsy (see also strokes) Guillain-Barre syndrome Head injury Multiple sclerosis Parkinsonism Poliomyelitis Spinal muscular atrophy Viral encephalitis

Psychiatric

Anorexia nervosa Asylum experience Autism/Asperger's syndrome Bereavement Bipolar affective disorder (manic-depression) Depression General psychiatry Hysteria Obsessive-compulsive disorder Pathological jealousy Personality disorder Postnatal depression Schizophrenia Suicide Unipolar affective disorder

Tumours

Bladder cancer Breast cancer Breast cancer and lymphomaCancer in general Cerebellar haemangioblastoma Choriocarcinoma Colonic cancer Desmoid tumour Endometrial cancer (uterus) Ewing's sarcoma Fibrosarcoma Laryngeal, throat, and vocal cord cancer Leiomyosarcoma Leukaemi aLung cancer Lymphoma Malignant melanoma Multiple myeloma Oesophageal cancer Ovarian cancer Prostate cancer Renal carcinoma Reticulum cell sarcoma Testicular cancer

Infections

AIDS Botulism Legionnaire's disease with complications Tubercular meningitis Tuberculosis Typhus

Inflammatory conditions

Ankylosing spondylitis Churg-Strauss syndrome Lupus erythematosus Polymyositis Rheumatoid arthritis Sarcoidosis

Cardiovascular

Heart attack and bypass surgery Heart failure Heart surgery Heart transplantation Heart valve surgery

Endocrine

Diabetes mellitus

Gynaecological

Infertility

Miscellaneous

Asthma Child abuse Hepatitis and liver transplantation Ill health Leg amputation Old age

Drugs

Alcohol Fluoxetine Heroin Mescalin Opium Psilocybin

Anthologies

Anthologies